
Originally Posted by
hespectnogi
Sounds pretty similar to Raynaud's. My condition is just my body's over reaction to cool outside temps. If it's below like 65 degrees farenheit My hands, feet, and ears get ice cold and turn pale white or blue and my grip gets significantly weaker from it. But your red blood cell deal sounds pretty shitty, does it mess with your cardio?
Haven't noticed an effect on cardio as yet. But when my hemoglobin levels drop the anemia kicks in and my bone marrow can't produce enough new red blood cells to keep up with the ones being destroyed. This means my main organs become tired as do I physically. My hands also become stiff, swollen and painful. Recovery from injury also takes longer when the anemia is at it's worst as I have just experienced for the first time recently. I don't fully understand the ins and outs of it as yet due to i being quite rare and only recently having experienced the full effects of the anemia. Also being a typical bloke I kind of ignored it since my diagnosis and thought recent events were down to an increase in training for NAGA (tiredness, stiffness etc). I have regular blood tests to monitor it then about 3 months ago the testing became more frequent and I was told it had worsened. On the mend now though and having read some more info on it and joining a FB group with the disease I've become to understand it better and what I should be doing to help elevate the condition until hopefully one day they find a cure.
My wife suffers with Raynauds (a right pair ha). She experiences the same as yourself. Do you do anything specific to help avoid suffering on a day to day basis. She wraps up and wears gloves but even then on occasions she still suffers.